Category Archives: Child Development

There is Some Hope for the World

liaBetween hearing horror stories about what is happening in education from our families, as well as reports and studies and seeing the results first hand day in and day out from our families, there are some glimmers of hope that we might survive in spite of our governments and institutions.

As much as I care about all of our kids with developmental problems, I am on a larger scale really concerned about our future as a society. We have wars going on all over the planet, people seem to find new reasons for killing and harming each other, and technology keeps giving them faster and easier ways to do it. We have people starving, people who lack even the basics needed to sustain life. One would think that in 2014 we would have some clue as to how to live together and help and support each other on this tiny planet; but evidently we don’t.

There are obviously a lot of things that need to be done; but we certainly do need to make everyone smarter, and we really need to help some people become really smart. We can help more of the people get it and some of the people really wrap their heads around the problems and start really fixing them.

Today I saw a glimmer of what can be. I saw a beautiful young lady who gave me hope. At her last evaluation I encouraged her family to buy her her very own set of encyclopedias. She likes to read—a lot. On good days her digit spans are hitting 12, and today her math was testing at high fourth grade, word recognition at college level, and reading comprehension at tenth grade level. She carries around medical books for casual reading, and today she needed to tell me about what she thought were the three most interesting spinal diseases. Cute, sweet, great sense of humor. (With an impish grin of her face today—just to mess with me—she said she thought that TLP was causing her tinnitus. Then she laughed.) She’s doing wonderfully physically and starting to get into doing chores. Great kid. And, by the way, she’s five! Five! Meet Lia.

There is hope for the world.

What Cannot Be Understood or Solved Gets Labeled

Labels in SchoolWe just received this from one of our NACD moms:

I wanted to share with you a jaw-dropping experience I had today:

I was having a meeting with an educational diagnostician regarding my daughter’s evaluation for next school year. I kept voicing my concern about how I didn’t think that the school district was up to date with newest research in neuroplasticity and wouldn’t provide her with the best possibilities that are available. Anyway, I must have used “neuroplasticity” 3 times in our conversation. At the end of the meeting, she said, “I’m sure that most teachers would look up any label that a child would have and make themselves familiar with that label. Now I’ve never had a student who had Neuroplasticity, but I’d be sure to look it up!” Then she asked me if I had any other questions and I said, “Nah, I think we are done.”

I’m afraid that this story typifies the current state of affairs. Training for those who work with educational and developmental problems is much more about labeling and categorizing than about addressing and fixing problems. The educational system and other disciplines that “help” us with our children and to take care of ourselves perceive that they are serving us if they can successfully give us a label. It sounds a bit better if it is called a diagnosis, but it is still a label; and once given, we are often categorized and a corresponding prognosis assigned. As this mother’s story has so well illustrated, it’s not about understanding and addressing a problem; it’s all about what you call it.

What cannot be understood or solved gets labeled, and then solving the individual’s problem often becomes less imperative, and the focus becomes how to make “appropriate” accommodations.

Psychologist: “Mrs. Smith, we have done comprehensive testing and we now understand why your son isn’t paying attention and is distractible. He has ADHD.”

Mrs. Smith: “What is ADHD?”

Psychologist: “That means he can’t pay attention and is distractible.”

Greater and greater percentages of our children are being labeled every year, and according to the professionals, they have diseases. Because they have diseases, they are all kind of the same; and because they are all kind of the same, then they need to find the cure that fits all of them; and until they find the cure, your child is essentially incurable. Having an incurable disease means that they can perhaps treat/mask the symptoms, but until the cure is found you’re kind of out of luck. Not.

What about your child being a unique human being, a person who has never existed before on the planet?

What about that thing that makes our brain development possible, and which wires each of us uniquely, and which is affected by everything we see, hear, feel, smell, taste, and think? Neuroplasticity.

Neuroplasticity is not a disease; it’s not a label. It is that thing that makes each of us who we are at this moment and which makes us a little different every millisecond. That thing that also affords us unlimited potential.

Neuroplasticity:

Understand it.
Believe it.
Take advantage of it.

Is Anyone Listening? Sensory/Motor Treatment for Autism

autismIn a scientific article published in Behavioral Neuroscience, May 2013, researchers at the University of California Irvine found that environmental sensory and motor enrichment serves as an effective treatment for autism. This may be the first “official” study demonstrating that sensory/motor treatment can effect change in autistic children. (I actually applied for a government grant back in 1974 to research a significantly more comprehensive developmental-sensory/motor program. It was rejected by the government because there wasn’t any research that would show that it worked—which would have been the point of the study–but the reality is that academic institutions get the funds, not the people who are out there actually making the discoveries.) Sadly, most people in the field still don’t get it. Where would we be without such open-minded people who are in possession of such wisdom? We have since been able to compare literally thousands of children within the spectrum based on the treatments they received prior to NACD’s Targeted Developmental Intervention and with TDI, using the children as their own controls. We have been fine-tuning what works for over forty years and helping these children not only progress faster, but in some cases lose those dysfunctions and behaviors that define autism.

The UCI study found that providing sensory and motor input, even if not individualized to a child’s specific sensory or motor issues, leads to much better overall results than the standard treatment alone. The standard treatment included ABA (applied behavioral analysis), traditional speech therapy, occupational therapy, and social skills therapy. The researchers divided 28 autistic boys, ages 3 to 12, into two groups based on matching ages and severity of autism. The control group underwent standard therapy, and the treatment group received standard therapy along with “directed environmental enrichment.” The directed environmental enrichment included a kit of different objects that were “sensory,” but which they felt addressed common sensory-motor issues for autistic children. The kit contained essential oil fragrances for smell, squares of materials such as sandpaper and felt for touch, pieces of multi-textured materials to walk on, and items to manipulate such as a piggy bank with plastic coins for motor issues. The parents were also directed to do different exercises, such as dip their child’s hand or foot in bowls of water at varying temperatures of hot and cold, or touch the child with metal spoons that had been heated or chilled. The treatment group was directed to do two 15-30 minute sessions twice per day, with each session consisting of a few activities involving different combinations of the sensory stimulation objects and exercises. The children also listened to classical music once a day.

After six months, 69% of the parents of the treatment group children reported improvements in overall autism symptoms, compared to only 31% in the control group. Furthermore, 42% of the children in the treatment group made significant progress in social behaviors and responsiveness, compared to only 7% of the control group. The children in the treatment group also improved perception, reasoning, and other aspects of cognitive function, whereas the control group of children undergoing today’s standard treatment for autism actually had a measured decrease in cognitive function!

I actually find the results pleasantly surprising. As most of our families would testify, the amount of intervention was incredibly minimal and the intervention was neither targeted nor individualized. As we continue to learn, the more specific we can be in understanding the individual and applying very specific targeted treatment, the more effective we can be. Children with the same label can be incredibly dissimilar. I appreciate the UCI team’s work and their acknowledgement of the role of sensory/motor treatment in those within the autism spectrum and for bring this information forward. One would hope that practitioners would not now view this study and adopt the treatment regime used in this study as a model for a basis of treatment, but would open their eyes to the potential and join us in building the understanding and developing really individualized targeted programs and, based on that knowledge, to help in the development of more and better tools. Having worked with the sensory/motor issues related to autism since the late sixties, and having put information out for the public’s use for over forty years, I would hope and think that more people would be listening. This isn’t new information! It never ceases to amaze me that of the thousands of therapists and educators who view firsthand the children that work with NACD and the difference that Targeted Developmental Intervention makes, that only a handful ever want to understand what produced that change. But it only takes a few dedicated free thinkers to get involved, to help us reach a critical mass, produce a tipping point, and change perspectives and lives. I am happy to speak with or assist any researcher, therapist, physician, or educator who would like to learn more about what we have been doing for all these years and what we have found that works. After so many thousands of children from around the world and so many years of striving to understand and treat these issues better, we have actually learned a thing or two. And, as always, we are looking to help any parent who wishes to help their child.

Related Links

Original Article (PDF): Environmental Enrichment as an Effective Treatment for Autism: A Randomized Controlled Trial – Cynthia C. Woo and Michael Leon – U.C. Irvine – Behavioral Neuroscience May 2013

To learn more about NACD’s Targeted Developmental Intervention:
http://www.nacd.org/get_started/what_is_nacd.php

To learn more about NACD’s approach to treatment for autism:
http://www.nacd.org/labels/autism.php

May 15, 2013 – International Day of Families

bucuresti2Today I have been seeing families in Bucharest, Romania. This is my second of eight days of seeing children and families here. I arrived in Bucharest after seeing children in Barcelona and London. Between these three cities I will have seen families from many different countries. All of these families have children with developmental issues; all of these families are dedicated to their children; and all of these families are assuming responsibility for their children and their children’s futures. They are all exceptional and can serve as models for parents and families everywhere, not just families of children with issues, but all families.

In all of my years of travel, seeing children and working with and through families, there is one glaring truth. Wherever the families live, whatever their nationality, whatever their heritage, whatever form of government they live under, whether the family is defined as one parent or two, as only one child or a house full, grandparents or extended family in the home, whatever constitutes the family, they are all united in the care of and dedication to their children and the assumption of responsibility for their children. These families are not looking for their governments to do the job; they rather universally only ask that the government stay out of their way. These are dedicated parents who are absolutely amazingly alike.

In the seventies I was the clinical director of a large United Cerebral Palsy organization. I received grants from the state and federal governments and created model programs and was by most definitions quite successful producing significantly better results than other schools or agencies. But I came to a realization: that whatever I was able to provide for those children within our school and clinics, it was not enough. I also realized that the governments were never going to have the funds to give the children enough, and that expectations were not based on potential, but on the economic realities of what the system could afford to give, and that over time everyone bought into and accepted this distortion of reality and potential. Actually, not everyone–not the families I have been working with all these years. The families who say, “This is my child, this is my son, this is my daughter and I am responsible. I am going to help my child be all they can be. Help me or get out of my way.”

So on this International Day of Families, I am happy to offer up our NACD families from all over the world as models for what families can and should be. All of us at NACD are privileged to be able to know and assist these fantastic families.

Related Links

NACD International

Ex Libris

iStock_000000182279_L1NACD now has an extensive recommended reading list that I want to share with you. When reviewing the book list, please keep in mind that there are various ways to experience, enjoy, and learn from a book.  Books should be viewed as a from of entertainment; a resource for knowledge; a means by which to develop vocabulary, build the ability to process, visualize, conceptualize, and understand information, and a means to learn about history, people, and life.  Through books we can learn about fantasy, learn to imagine, dream, and create. Without the benefit of books it is very difficult to learn and understand the human condition. We can learn from the lives and experiences of others and develop a deeper understanding not only of others, but ourselves.  We can gain these benefits not only by reading these books ourselves, but also through the experience of others reading them to us, from the shared experience through book clubs, from shared reading, and even from audio books. As you review this list and pick books for your child (or help them pick books), remember these options.  If you want the child to enjoy a book that they are going to read themselves, you don’t want the vocabulary to be too challenging.  You want them to be able to read and move through the book relatively quickly.  If the book is a bit more challenging, consider shared reading. With shared reading you read a paragraph or a page, and your child reads the next.  With shared reading you can help your child with any new or difficult words, and with your reading with your child you can keep the pace moving fast enough to keep it interesting.  If the book is even more difficult, simply read the book to your child, or if time does not permit, see if you can find an audiobook version. Always try to encourage your child to have a dictionary handy, or preferably one of the new app dictionaries, that can give your child the pronunciation of the word as well as the definition.  The best way to teach this is by example.

Experience books with your children and give them the wonderful gift of learning to love reading and love learning.

Download NACDs Recommended Book List (PDF)