Tag Archives: kids

Don’t Get Lost in the Pieces

sagrada-familia-gaudi-sideI have spent this week in Barcelona, lecturing on developing cognitive function in children with Down syndrome, seeing some great families, and getting to know this new Barcelona. I traveled here and actually lived here for almost a year back in the seventies. It is incredible how much has changed in forty years. The city has grown tremendously, added a lot of new modern buildings, dramatically resurrected their port area, and really changed the complexion of the city. Since hosting the Olympics in 1992, the city has become much more diverse in its population and has become a favorite of tourists.

Part of the dramatic change in Barcelona that I was delighted to see is a change in the perception of special needs children. They have come a long, long way from where they were when I was working with children here in the ‘70s. It’s hard to believe when looking at the progressive open mindedness of the educators, therapists, and physicians today that forty years ago special needs children were often referred to by the professionals as “los animales” — the animals. In the ‘70s I left in frustration; but now I’m looking forward to working with both the families and professionals here again.

Today I had a rare day–I actually took the day off before heading to London tomorrow morning and at the insistence of my son, Laird, and his fiancée, Sadie, we went to visit what is truly one of the architectural wonders of the world, the Sagrada Família. The Sagrada Família is a church which began being built in 1882 and was taken over in 1883 by the architect Antoni Gaudí. Gaudí created a design and concept that has led to an ongoing project that will probably not be completed until the first third of the 21st century. Gaudí was inspired by nature and used his understanding and appreciation of nature to guide his work in this incredible, virtually organic building.

We walked around and through this church and looked at literally thousands of amazing design and structural details and more thousands of ornamental details, many of which depicted animals, plants, and people. As you look at it, particularly from the interior, you almost expect it to take a deep breath and come to life. Tending to never get more than a few heartbeats away from my passion, kids, I was compelled to make an association between this incredible building and a child. It is very easy to get lost in all of the amazing pieces of this building, from the great turtles supporting some of the exterior pillars, to the vines and leaves and creatures you discover everywhere, to the magnificent pillars supporting the structure of the church that resemble trees and branches. But if you get lost in the pieces, you miss the amazing aggregate of this totally unique building. I couldn’t help but think about how easy it is to also get lost in a child’s pieces, to see how parents, but more often teachers, therapists, and physicians, can become so focused on some of those pieces and often not see the magnificent totality of the individual. All of us, parents and professionals alike, must always look at the whole child first, the truly unique child, and not get lost in their pieces. Yes, we need to address problems and examine issues; but first see the child. If we don’t, we will never properly address their problems, and we will never help that child to become who they are. We cannot look at a child as a collection of pieces and do them justice. We need to work with them from the top down. See them as the people they are, and from that foundation then address their pieces. And, just like the Sagrada Família, our children are all a work in progress. Somewhere along the way the professionals in Spain started actually looking at all of the children and seeing a child.

Related Links

NACD Down Syndrome
NACD International

Dateline 2025: ADHD

Today in a joint announcement, the President, in conjunction with the US Department of Education, the AMA (American Medical Association), the NEA (National Education Association), and the PMDC (Parents for More Drugs Consortium, which is sponsored by the IDP – International Drug Producers Consortium-and BLP-Better Lives Through Pharmacology) were proud to announce that they have reached their joint goal to help every child in the nation receive an appropriate diagnosis and, through federal legislation and mandated funding, to provide every child with a minimum of two mind/brain-altering drugs. This project, which was begun in 2015, was an effort to have all children with ADHD “appropriately” identified and treated with amphetamines. It should be stated that the government wanted strict guidelines for the diagnosis: children needed to meet the criteria of not liking school and preferring screen time to reading. As part of the initial project, it was also realized that legislation would need to be passed to mandate drug administration over parental objections. The projected number at the time this was initiated was a conservative 65% of the school population. Consistent with what has now been proven through “research,” this number is now close to 85%, with the majority of these students also fitting into the WAS, Work Avoidance Spectrum, which was discovered through the ground breaking work of YAGI, You’ve All Got IT Laboratories. WAS has reached and surpassed all projections and has now reached epidemic proportions, touching nine out of ten of our children. 

In today’s New York Times (read the article here and watch the video below) there was an alarming article about the rise in ADHD diagnoses and the number of children being medicated for it. The article states that one in five high school age boys have been given the “medical” diagnosis of Attention Deficit Hyperactivity Disorder. 6.4 million children between 4 and 17 have been “diagnosed.” This is for an imaginary disease that was only created in the 1980s. This is not only shocking but also ridiculous and horrifying.

You can’t get a blood test to identify ADHD; they can’t do a chromosome test; they can’t do a biopsy to make this “medical diagnosis.” They might run through a checklist that includes questions about attention, hyperactivity, and impulsiveness. To see the actual “test,” go to http://www.cdc.gov/ncbddd/adhd/diagnosis.html. Often the reality is that a teacher might suggest that you ask your doctor about ADHD, and then you tell your doctor that the teacher told you to ask, and he takes out his prescription pad.

The issue of using a medical model for developmental problems is of huge concern. We have seen thousands of children who have come to us with such diagnoses, all of whom are “NORMAL,” disease-free kids who, like everyone else, have some developmental issues. Put together a few common issues like poor auditory processing and a bad diet, just to mention a couple of many such issues, and—BANG!— you have a disease. No, you do not—you have an auditory processing issue and eat pancakes for breakfast. Giving you a label of a disease and drugs is not going to address your auditory processing or dietary issues. Ah, but most kids pay better attention when given the drugs, they say. Guess what? Most everyone pays better attention when using the drugs. Perhaps we all should take more drugs? But, then again, they have side effects; and gee, I wonder what they are going to find out about what long-term effects use of these drugs produce? Could there be effects on future generations? If you buy these drugs on the street, they are called all kinds of things, like “speed” and “uppers.” These drugs are psycho-motor stimulants, which can produce wakefulness, decrease appetite, and have a whole slew of side effects. But they do not fix what is broken or undeveloped. I just took a couple of minutes and put together a preliminary list of different correctable factors that could lead to this wonderful disease label if you would like to review it, scroll to the bottom of this article. To be fair, there are some kids who are bouncing off the walls who need medication while the broken pieces are being addressed; but that is a very, very tiny percentage. This trend to create symptomatic labels and medicate our children is truly horrifying. Doctors do not have methodologies to address developmental problems; doctors do not treat developmental problems; schools and teachers do not address and treat developmental problems. Schools complain and doctors write prescriptions. I wish I could get more people to listen and to understand what great potential we all have. We all have the potential to do better, we all have the ability to do better, we just need the opportunity to do better. And at NACD we so enjoy helping to do it!

I will have a lot more to say about this subject shortly.

Issues That Can Lead to a “Diagnosis” of ADD or ADHD

by Bob Doman

 Vision

  • Acuity/sight problems
  • Convergence issues
  • Tracking issues
  • Astigmatism
  • Underdeveloped central vision
  • Hyperperipheral vision
  • Excessive visualizing negatively impacting visual attention
  • Poor visualization
  • Low visual sequential processing
  • Reduced visual short-term memory
  • Reduced visual working memory
  • Reduced visual long-term memory
  • Excessive screen time

Hearing and auditory function

  • Hearing loss
  • Issues with processing specific frequencies
  • Otitis media/middle ear fluid
  • Ear infections
  • Figure-ground issues
  • Low auditory sequential processing
  • Reduced auditory short-term memory
  • Reduced auditory working memory
  • Reduced auditory long-term memory
  • Inadequate conceptual thought
  • Visualization/conceptualization imbalance
  • Visual vs. auditory processing imbalance

Physiological issues

  • Blood sugar issues
  • Food allergies
  • Food sensitivities
  • Excessive carbohydrates
  • Excessive sugar
  • Excessive food colorings and artificial sweeteners
  • Inadequate protein
  • Bowel/gut disorders
  • Sleep disturbance
  • Respiratory issues
  • Toxins
  • Environmental allergies
  • Cardiac issues

Motor issues

  • Poor fine motor development
  • Poor manual dexterity
  • Poor pencil grasp
  • Inadequate writing instruction

Behavioral issues

  • Lack of interest
  • Lack of intensity
  • Lack of proper intention
  • Global immaturity
  • Developmental delays
  • Avoidance behaviors
  • Excessive social focus
  • Lack of social awareness
  • Not present
  • Subdominant/emotional
  • Negative attention-getting behaviors
  • Poor feedback
  • Improper behavioral training

Educational structure issues

  • Poor instructional environment
  • Lack of intensity
  • Curriculum heavy
  • Educational content not engaging
  • Not directed to individual’s processing level
  • Negative environment
  • Low expectations
  • Excessively high expectations
  • Personality conflict
  • Excessive duration
  • Inadequate review
  • Lack of individual attention
  • Teacher’s speech or accent
  • Extraneous classroom sound/noise
  • Extraneous/distracting visual environment
  • Proximity of other students
  • Bullying
  • Cliques
  • Social pressure to perform
  • Social pressure not to perform
  • Social pressure to act out
  • Lack of parental involvement
  • Excessive parental involvement
  • Reading, math, etc. levels below class
  • Reading, math, etc. levels above class
  • Difficulties understanding English or language used in classroom

Learning Isn’t Tough

Learning isn’t tough. It actually can and should be fun and easy. It never ceases to amaze me how our schools can take learning, which can be so much fun and comes quite naturally to all of us, and make it all so very difficult, so painful, and fail so many of our children in the process.

I just saw one of our families who came out to Utah for their two “typical” girls to go skiing on the “best snow on Earth” and to get their evaluations and new programs. Both parents work full time and manage the girls and their short programs as they can. Both of the girls have been doing program since they were about two months old. The girls showed me their stuff at their evaluations, and both are doing very well; but big sister GiGi really showed off. GiGi had an auditory digit span of 5, and her reading tested out at the level of the average child in the nation in the middle of third grade. She has excellent language skills, is quite conversational, bilingual, and was skiing independently on her first day ever on the slopes. GiGi, during her little sister’s eval, sat quietly and read to herself, quite the mature young lady. All and all a great child whose little sister isn’t going to let her get too far ahead. One other rather significant piece of data in the equation is that GiGi is only three years old!

I also just received an email from Lyn Waldeck, one of our evaluators based outside of Dallas. Lyn has raised and home schooled five boys, while working with/for NACD since 1993. Lyn’s boys have all done exceptionally well, and she and all of us at NACD are very proud of all of them. Today’s news was that Grant, Lyn’s youngest, will be starting college classes this fall at fourteen! Grant attended school this year for his first and only school experience so he could get his feet wet in a classroom before taking college classes. He will be attending a really cool STEM (Science, Technology, Engineering, and Math) school and will be off and running, chasing after his very successful big brothers.

We have seen many of our NACD kids enter college at fourteen and go on to have very successful college experiences and excel in their professions. Learning isn’t tough, but school often is. Someday we might succeed in fixing our very broken educational system, but in the meantime, parents, you had better take charge. Whether your child attends school or not, parents still need to assume the primary responsibility for their child’s education, and, of course, a little NACD program and guidance never hurts.

We are really proud of all of our exceptional children and their exceptional parents.

Related links:

“Raising Expectations”
NACD Guide to Child Development & Education – NACD Bookstore

Emus in the Snow – On Becoming Highly Capable

laird_emuYep, it’s true. Those are emus; they are in the Utah mountain snow, not in the Australian outback; and that little guy is my son, Laird, who was about five at the time. He was shoveling paths to the bird pens so we could get them food and water and hopefully gather their eggs before they froze. We really liked collecting those big green eggs, which we incubated and hopefully hatched into chicks. Back then those chicks were worth about $5,000 each. (I bet you thought I was crazy. As they say, “like a fox.”) In one of the chapters in my life I was a child developmentalist/rancher and raised emus and other exotic critters in the mountains of Utah. It was great fun, a family learning experience, adventure, a particularly great opportunity for my younger son Laird and fortunately generally financially rewarding, helping to support my work with kids. Laird learned about chores early and loved not only being a “helper,” but learning to assume responsibility and not to fear big tasks–Herculean tasks.

laird_snowOne of my favorite memories involves the building of our home and developing our ranch. Shortly after we moved into our new home, two landscapers were coming up to put in a sprinkler system around the house. They would arrive early, like 6:30 a.m., to begin work. When they arrived Laird would be waiting for them with his little wheelbarrow and shovel, ready for work; and work he did. I have no doubt that those guys worked harder and faster than ever because they had this little kid pushing right beside them, never wanting a break. When the system was almost complete, the last guy on the job was putting the final pieces together in the in-ground control box. Three-year-old Laird couldn’t help with that task, so he on his own accord went and found his little folding chair, one of his reading books (“Bibs”), set the chair up next to where the guy was working, sat there, and read the entire book to him. If he couldn’t help, he could entertain.

(Isn’t amazing that our educational system can take little children who love working and love learning and in twelve years teach them that “work” is a four letter work and to hate learning anything? I think the system is broken–how about you?)

scottish_cattleLaird happily requested more and more jobs on the ranch. The young emus needed to be exercised to strengthen their legs, so Laird would run up and down the chick pens with these three-four foot tall chicks/creatures often towering over him. (If you haven’t seen an emu up close, they have big, clawed feet and look more like velociraptors than birds.) When he was a bit older he would be out before daylight in below zero weather, dragging forty-pound bails of hay out to our Scottish Highland cattle. He did these chores willingly, always looked for more, and was justifiably proud of himself and his achievements. Teaching our children to take care of themselves is huge. Raising children to be adults requires more than teaching them the “three Rs;” we need to teach them to be “highly capable.” I know of families whose children don’t know how to do their laundry, buy or prepare food, or clean their living space; who don’t understand the value of money nor how to be responsible; and yet they are sending them off to expensive colleges. Their odds of success are not great.

I will be writing an article for our NACD Journal and newsletter shortly talking about the concept and perception that we need to help our children become “highly capable.” This is a very important concept for all of our kids, not just our “typical” kids.

(Laird is now 24, working on completing his degrees, and functions as the Chief Operating Officer of NACD. Laird spent last summer in Paris, studying international marketing on a full scholarship.)

One last thought: When it comes to doing things in and around your house, if your kids could do it, then perhaps they should do it.

Related Links

NACD Family Chore List

Waiting for Hercules

Light at the End of a Marathon

Congratulations and thank you, Louise! Louise ran the entire marathon, not walked and ran, but ran the entire marathon and also raised $1,400 for our scholarship fund. But the biggest event was Louise epiphany. I would like to share with you her own words describing her wonderful experience:

“A personal note about the race that I’d like to share with you. Before the race, I hugged my daughter Charlotte for making me so strong and allowing me to achieve such a grueling athletic performance. On race day, I received a very big gift. One I could call: ” And with the running, came the healing” …in a very unexpected yet beautiful way. As I walked to the starting line, my shirt proudly said “Mom of 4. My special-need kid rocks.” I realized how much I, as a mourning parent -you know, we all have to move on past the loss of a “perfect” child – needed this final step in my healing. Yes, we helped Charlotte overcome many of her challenges. Yes, she surpassed all of our expectations. But there was one thing I forbade myself to do for a long time. Maybe out of shame, maybe out of guilt, or to protect her, or for reasons still unclear to me: I did not want the world to know that she had a genetic disorder. I did not even discuss it with many of our family members. I kept it in the hiding from a lot of people I knew. Yet, there I was, walking around 25,000 random strangers letting the world know that my child was different. And that was OK. That was more than OK…that was my very personal running leitmotif. Many people out there were running for cures, lost ones, personal records…and I was running with a bold statement about my own daughter on my shirt, finally letting go of the shame, getting an immense pride out of it. And guess what, that statement healed my soul and also made sure I would run all the way. And for once in my life, that “special-need” label did not drag me down or expect more of me…it made me take off, it took me one step above them all. And with the running came the healing. Final step of a long mourning process, first step of a great marathon race.

Thank you, NACD, and thank you, Charlotte.”
Louise

And thank you, Charlotte and Louise. Our NACD moms and kids are the best!

Related Links

Read Louise’s very personal account of her marathon experience here

Read about her fundraiser here: Part 1 Part 2